Tissue Bank newsletter Winter 2008

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Case study: Joan Grycuk
Joan Grycuk, tissue bank donor (centre) and family.

Joan Grycuk and her son Michael (second from the right) and family

Joan Grycuk, who had Parkinson’s, donated her brain to the Tissue Bank in October 2005. Joan’s son, Michael, spoke to Kirstin Goldring, Tissue Bank Manager, about her decision.

“My mother always made it clear that when she died, if medical people wanted to use parts of her body for research then she was happy for this to happen. She had decided she wanted to donate parts of her body to help others.”

Mrs Grycuk was 81 when she died, and Michael described her as being very fit up to that point, apart from the problems with Parkinson’s.

“She was a very independent and resourceful woman. She walked everywhere and had travelled the world. She never asked for help from anyone, so developing Parkinson’s was very difficult for her.”

The family was initially unsure of whether to go ahead with tissue donation when Joan died, but Michael felt it was important to fulfil his mother’s wishes.

“On the day she died, I said to the family that mum had wanted to donate tissue. The family was not sure whether to bother, as she had said it some time ago. I told them that is the point: you say it so people know, and can do something about it when the time comes, as you may not be able to tell them again.”

Michael didn’t immediately know what to do to in order to fulfil his mother’s request.

“At the time, we looked up the Parkinson’s Disease Society’s website and saw the information about the Tissue Bank and that it was asking for donations. The Tissue Bank website was well laid out and it was a very easy procedure to follow, and everything was done very efficiently,” he explained.

The process of the actual donation was described by Michael as very quick with little fuss or trouble.

“Seeing her afterwards did not distress the family at all. They were hardly aware anything had happened,” he said.

Michael also spoke of the importance of people becoming donors, like his mother.

“If you don’t do research into diseases or illnesses, then you will never find a cure, and progress stops. Often it’s the relatives who become distressed at the idea of their loved one becoming a tissue donor, but it was my mother’s expressed wish to help someone else, and I didn’t hesitate to do so.”

If you would like to share your story and reasons for registering with the Tissue Bank, or tell us why your loved one decided to do so, please email pdbank@imperial.ac.uk, or call Kirstin on 020 7594 9732.

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Inside this issue:
New International Research Case Study A Day in the Life of a Technician Meet the Team
Contact Details

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