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UKPDSTB logo Page 2 of 4 Brain Bank Bulletin Issue 2

Spring 2004

Inside this issue:
The Weakest Link 1 Parkinson's Awareness Week 1 A Personal View 2 The Story so far 2
Research Progress 3 Branch Talks Information 4 Contact Information 4 Our Team 4

A Personal View of Tissue Donation

The death of a loved one is obviously a very emotional time for anyone, the following article describes a personal view of donation of a loved one's tissue to the Tissue Bank at this difficult time. Molly Davies very kindly agreed to talk to us about how she felt about her husband’s donation to the Tissue Bank.

Molly, whose husband Ian died last year, felt that although Parkinson’s can be very difficult to live with, registering to become a donor to the Tissue Bank is one way people can make a positive move in the face of the condition. Ian Davies had Parkinson's, but Molly says this was by no means the sum of him. Parkinson's came at the end of a very full life, which included a long career as a judge, a keen interest in sports and even some parachute jumping! Before he died, Ian was unwell and it was a very difficult time for them both. However, they decided Ian should register with the Tissue Bank. Then when he died, Molly found a sense of comfort in the valuable gift of tissue donation.

"Something good came out of it," says Molly. Her view was reinforced by her visit to the Tissue Bank. Molly says she found it inspiring and uplifting to see the amount of work that was going on with the tissue. "I particularly enjoyed going around the laboratories and was intrigued by the lectures and the microscope slides. Visiting the Tissue Bank gave me a great boost and I was reassured as to what had happened to the tissue Ian had donated. I decided having helped arrange the donation for Ian, I must do so myself and I also signed up to become a donor."

Molly at the 2003 tissue bank open day

Molly at last years Open Day

28th March 2003

If you have missed this year's event (16th April 2004) then there will be another opportunity next year.

Dr Yasmin Hadi and Dr Kirstin Goldring


The Story so far...

The number of people signing up to the Tissue Bank has continued to increase over the past few months and the production of the last newsletter led to an influx of requests for information and people registering with the Tissue bank. Graph 1 shows the number of people requesting information from the Tissue Bank and also the number of people that then went on to register with the Tissue Bank (up to the end of February 2004).

Graph 1:
Comparison of prospective donors registering compared to forms sent out

Prospective donor registration compared to forms sent out

Graph 2 shows the age range of those registered with the Tissue Bank. The majority of those signed up are in the 60-70 age group. See article by Dr Dexter on the front cover.

Graph 2:
Distribution of Registered Donors – Age range

The age range of registered donors

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